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The Millennial Parent: How can I plan for the care of my special needs child?

As a parent of a special needs child, planning for their care and future can be an overwhelming and daunting task. However, with proper planning, you can ensure that your child will have the necessary resources to live a fulfilling life. In this article, we’ll discuss some of the essential steps you should take to plan for the care of your special needs child.

Step 1: Start with a Comprehensive Estate Plan

One of the most important steps in planning for the care of your special needs child is to establish a comprehensive estate plan. Your estate plan should include a will, a trust, and powers of attorney. A will outlines how you want your assets distributed after your passing, and a trust can provide long-term financial support for your child. With a trust, you can appoint a trustee to manage the funds on behalf of your child, ensuring they are used for their care.

Additionally, powers of attorney can provide legal authority to an appointed person to make medical and financial decisions on behalf of your child, in case they are unable to do so themselves.

Step 2: Understand Your Child’s Needs

Every special needs child has unique needs, and it’s essential to understand your child’s specific needs and requirements. This understanding will guide your estate planning decisions and help you determine the level of care your child will need after you’re gone.

Some of the factors to consider include their medical needs, educational needs, social needs, and any future care requirements. Once you have a clear understanding of your child’s needs, you can begin to develop a comprehensive plan that addresses those needs.

Step 3: Research Government Benefits and Programs

As a parent of a special needs child, you may be eligible for government benefits and programs that can provide financial and medical assistance. Research the benefits and programs available in your state, such as Medicaid and Social Security Disability Insurance (SSDI). These benefits can help offset the costs of medical care and provide financial support for your child’s long-term care.

Step 4: Consider Special Needs Trusts

A special needs trust is a type of trust specifically designed for individuals with disabilities. These trusts are intended to provide financial support for the beneficiary without disqualifying them from government benefits.

In a special needs trust, a trustee manages the funds on behalf of the beneficiary, ensuring that the funds are used for their care and well-being. This type of trust can also provide peace of mind for parents, knowing that their child’s financial needs are taken care of.

Step 5: Develop a Comprehensive Care Plan

In addition to financial planning, it’s essential to develop a comprehensive care plan that outlines the level of care your child will need after you’re gone. This plan should include information about their medical care, education, and social support.

Consider including information about their preferred living arrangements, such as whether they would prefer to live with family or in a group home. It’s also important to appoint a guardian or caregiver who will be responsible for their care after you’re gone.

Step 6: Review and Update Your Plan Regularly

Once you have a comprehensive plan in place, it’s important to review and update it regularly. As your child’s needs change, you may need to make adjustments to your estate plan, care plan, and financial plan. Regular reviews can ensure that your child’s needs are being met and that your plan is up-to-date.

Planning for the care of a special needs child requires careful consideration and preparation. By following these steps, you can ensure that your child’s needs are met, and that they will have the resources necessary to live a fulfilling life. With proper planning, you can provide peace of mind for yourself and your family, knowing that your child will be well-cared for after you’re gone.

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Breena Fain
Breena Fain

Breena is a writer, certified death doula, and co-founder at Addio based in San Francisco. She leads Addio's content efforts and helps families navigate their end-of-life plan. In her free time, you can find her at the piano, on the beach with her dog, eating her weight in sourdough bread, and volunteering at a local SF hospice facility. (She's also who runs all our social media accounts so be sure to say hello!)

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Should you create an online will or use an attorney?

If you're weighing the pros and cons of doing it online versus going through an attorney, let us break it down.

Take the quiz